WEST LAFAYETTE, Ind. (WLFI) – You can help a West Lafayette family win $100,000 for research for a rare disease that’s made an enormous impact on their lives.
Three of Julie and Trent Smith’s children were diagnosed with Niemann Pick Type C, a genetic neurological degenerative disease. Two of those children, 10-year-old Braden and 15-year-old Riley, have died from Niemann Pick Type C.
The Smiths have now teamed up with Purdue head basketball coach Matt Painter in hopes of finding a cure for their son Keaton. Painter has chosen the Smith Family BReaK Thru fund as his charity of choice in the Infiniti Coaches’ Charity Challenge.
Julie and her nephew Brandt Smith appeared on News 18 This Morning to talk more about the challenge.
“Since it is a rare disease, funding is very limited. So any amount of money going toward a rare disease goes a long way,” said Julie.
Painter is currently in second place behind Ohio State head coach Thad Matta.
You can help Coach Painter take the top spot and win $100,000 for the Smith Family BReaK Thru Fund. To vote, follow this link. Voting is open until noon on Sunday, March 16.
Here’s a link to News 18′s original story on the Smith family.