MONTICELLO, Ind. (WLFI) – Heather and Kevin McCormick said they have gone through every parent-to-be’s worst nightmare.
“Unless you’ve gone through it yourself, you have no idea,” said Heather.
Heather learned at 21 weeks of pregnancy that she was carrying a child with Arthrogryposis Multiplex Congenita, a rare neuromuscular condition.
“His stomach wasn’t visible on ultra sounds which meant that he wasn’t swallowing amniotic fluid, and that he had clubbed feet and hooked joints at his hands,” said McCormick.
Her first son, Kendale John, was delivered in 2001.
Although AMC isn’t always fatal Kendale’s condition was severe.
“There’s hundreds of conditions that are associated with it, and unfortunately for us ours was a lethal version,” said Heather.
After losing their first born to AMC, Heather and Kevin became pregnant with their daughter Jenna, now 11 years old.
Then in 2008, the McCormick’s became pregnant again, only to hear more devastating news.
“At eleven weeks they could tell that our son Jameson’s joints were hooked,” said McCormick. “He had clubbed feet, and again a cystic hygroma at the back of the neck.”
McCormick was devastated to hear that another one of her children would suffer from AMC.
“When I found out that Jameson was affected the same, I knew in my heart that he was not going to make it. That it was really bad,” said McCormick.
In April of 2009, Jameson Thomas was born, but he only lived for two hours.
“Having lost one child is rough,” said McCormick. “Having lost two children is extreme. You’re never the same.”
After the loss of two children to AMC, McCormick found help through online support groups, and has dedicated herself to spreading awareness of the disorder.
“I think it’s better to be proactive and make everyone aware, so that they can become educated because it’s becoming more prevalent,” said McCormick.
Monday is AMC Awareness Day and Heather said she will continue spreading awareness anyway she can — no matter how small.
She and her co-workers at Lafayette’s MBAH Insurance will be wearing blue to show their support.